Abstract
Conducting design research in hard-to-enter care environments with children affected by stroke poses important ethical questions. Research focuses on procedural ethics or on situated ethics, emphasizing a hard-cut between research practices be-fore and during fieldwork. This paper explores this duality through an investigation of publicly available existing materials (i.e., biographies and YouTube videos). What was intended as a preparatory step before ‘entering the field’ becomes the primary way to better understand the role of the built environment in everyday lives of families affected by childhood stroke. In this paper we reflect on the shared space the investigation creates within a research consortium. We highlight how this exploration invites thinking differently about research practices in terms of ethics related to using existing materials as data, developing sensitivity to the research context, and opportunities for allowing differences between collaborating researchers.
Keywords
caring; children and youth; research ethics; secondary materials
DOI
https://doi.org/10.21606/drs.2024.769
Citation
Jellema, P., Tutenel, P., Moser, B., Schoss, A., Kevdzija, M., Jelić, A., and Heylighen, A. (2024) The space between procedural and situated ethics: Reflecting on the use of existing materials in design research on children affected by stroke, in Gray, C., Ciliotta Chehade, E., Hekkert, P., Forlano, L., Ciuccarelli, P., Lloyd, P. (eds.), DRS2024: Boston, 23–28 June, Boston, USA. https://doi.org/10.21606/drs.2024.769
Creative Commons License
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License
Conference Track
Research Paper
Included in
The space between procedural and situated ethics: Reflecting on the use of existing materials in design research on children affected by stroke
Conducting design research in hard-to-enter care environments with children affected by stroke poses important ethical questions. Research focuses on procedural ethics or on situated ethics, emphasizing a hard-cut between research practices be-fore and during fieldwork. This paper explores this duality through an investigation of publicly available existing materials (i.e., biographies and YouTube videos). What was intended as a preparatory step before ‘entering the field’ becomes the primary way to better understand the role of the built environment in everyday lives of families affected by childhood stroke. In this paper we reflect on the shared space the investigation creates within a research consortium. We highlight how this exploration invites thinking differently about research practices in terms of ethics related to using existing materials as data, developing sensitivity to the research context, and opportunities for allowing differences between collaborating researchers.