Abstract
Designers have been conducting research within healthcare with a limited ethical reflections, only considering aspects to get the approval from the corresponding ethics committee. That fails to reflect on the issues that may arise during fieldwork (ethics in the field), especially since designs involvement is precisely to understand intangible aspects such as personal values and experiences. In view of this and responding to the DRS 2022 conversation on Design+Ethics, we explore the knowledge gap in the intersection of ethics, design and healthcare, and present a case study in the context of service design within oncology carepath. Upon reviewing the existing literature, we identify a set of ethical principles and use them to redefine the tools and protocols we plan to use in our service exploration, during shadowing specifically. Our paper responds to the need of bridging procedural ethics in the field, by anticipating and reflecting on ethical dilemmas and issues.
Keywords
ethics; design for health; service exploration; cancer
DOI
https://doi.org/10.21606/drs.2024.959
Citation
Renedo Illaguerri, E., Sañudo, Y., Hartman, L., Bak, M., and Sierra-Pérez, J. (2024) Embedding Ethics in Practice: Preempting Ethical Issues in the Field by Reflecting on the Methodology of Shadowing Within Cancer Care Services., in Gray, C., Ciliotta Chehade, E., Hekkert, P., Forlano, L., Ciuccarelli, P., Lloyd, P. (eds.), DRS2024: Boston, 23–28 June, Boston, USA. https://doi.org/10.21606/drs.2024.959
Creative Commons License
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Conference Track
Research Paper
Included in
Embedding Ethics in Practice: Preempting Ethical Issues in the Field by Reflecting on the Methodology of Shadowing Within Cancer Care Services.
Designers have been conducting research within healthcare with a limited ethical reflections, only considering aspects to get the approval from the corresponding ethics committee. That fails to reflect on the issues that may arise during fieldwork (ethics in the field), especially since designs involvement is precisely to understand intangible aspects such as personal values and experiences. In view of this and responding to the DRS 2022 conversation on Design+Ethics, we explore the knowledge gap in the intersection of ethics, design and healthcare, and present a case study in the context of service design within oncology carepath. Upon reviewing the existing literature, we identify a set of ethical principles and use them to redefine the tools and protocols we plan to use in our service exploration, during shadowing specifically. Our paper responds to the need of bridging procedural ethics in the field, by anticipating and reflecting on ethical dilemmas and issues.