Abstract

When facing serious illnesses, patients and their caregivers encounter complex decisions throughout the care journey. Assisting in these decision-making pro-cesses has been a longstanding topic in palliative medicine, however, healthcare providers still face challenges in practice. Design contributions to healthcare have emerged in recent years. This overview focuses on the past decades’ litera-ture reviews in healthcare and design fields, examining interventions that foster communication and enhance informed decision-making in palliative care (PC), and investigating the design impacts in this context. This review of reviews uses thematic analysis to identify future opportunities for collaboration between de-sign and healthcare researchers to develop innovative interventions that address these issues in PC. The following themes were discussed: recommended practic-es, moments of conversation and caregiving, the dearth of design work, dissemi-nation, and implementation barriers. Findings urge more collaborations and bal-anced contributions from healthcare and design researchers in designing patient decision-making aids in PC.

Keywords

palliative care; advance care planning; decision aids; patient-centered design

Creative Commons License

Creative Commons Attribution-NonCommercial 4.0 International License
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License

Conference Track

Research Paper

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Jun 23rd, 9:00 AM Jun 28th, 5:00 PM

Exploring opportunities to design for decision-making in palliative care contexts: A rapid overview of recent literature reviews in healthcare and design fields

When facing serious illnesses, patients and their caregivers encounter complex decisions throughout the care journey. Assisting in these decision-making pro-cesses has been a longstanding topic in palliative medicine, however, healthcare providers still face challenges in practice. Design contributions to healthcare have emerged in recent years. This overview focuses on the past decades’ litera-ture reviews in healthcare and design fields, examining interventions that foster communication and enhance informed decision-making in palliative care (PC), and investigating the design impacts in this context. This review of reviews uses thematic analysis to identify future opportunities for collaboration between de-sign and healthcare researchers to develop innovative interventions that address these issues in PC. The following themes were discussed: recommended practic-es, moments of conversation and caregiving, the dearth of design work, dissemi-nation, and implementation barriers. Findings urge more collaborations and bal-anced contributions from healthcare and design researchers in designing patient decision-making aids in PC.

 

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