Abstract
Patient Empowerment (PE) has increasingly gained popularity in shaping the framework of healthcare systems. We present a case study at Natera, where we designed a patient-centric portal aimed at fostering patient engagement throughout the genetic testing journey. Through a patient-centric approach, we present the design process of creating a portal for patients to take control over their genetic tests. This is followed by the user research we conducted utilizing cognitive walkthrough and think-aloud methodologies. This is then followed by analyzing the data gathered through the user research conducted with organ health patients. We then conclude by presenting findings and outlining preliminary design implications. This research aims to shed light into the needs of patients for engaging with digital technology in the context of genetic testing.
Keywords
human-centered design; patient-empowerment; hcd; digital health; genetic testing
DOI
https://doi.org/10.21606/drs.2024.1133
Citation
Navarro-Sainz, A., Huda, S., and Bectarte, R. (2024) Unified Patient Portal: engaging patients throughout the genetic testing journey, in Gray, C., Ciliotta Chehade, E., Hekkert, P., Forlano, L., Ciuccarelli, P., Lloyd, P. (eds.), DRS2024: Boston, 23–28 June, Boston, USA. https://doi.org/10.21606/drs.2024.1133
Creative Commons License
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License
Conference Track
Research Paper
Included in
Unified Patient Portal: engaging patients throughout the genetic testing journey
Patient Empowerment (PE) has increasingly gained popularity in shaping the framework of healthcare systems. We present a case study at Natera, where we designed a patient-centric portal aimed at fostering patient engagement throughout the genetic testing journey. Through a patient-centric approach, we present the design process of creating a portal for patients to take control over their genetic tests. This is followed by the user research we conducted utilizing cognitive walkthrough and think-aloud methodologies. This is then followed by analyzing the data gathered through the user research conducted with organ health patients. We then conclude by presenting findings and outlining preliminary design implications. This research aims to shed light into the needs of patients for engaging with digital technology in the context of genetic testing.